I participated in a webinar last year for the members of the Cavernoma Alliance UK, which is a patient-led charity providing support for those diagnosed or caring for this with Cavernomas. This do terrific work and provide a lot of materials for clinical staff to help inform and educate patients.
It had a terrific response and so I will be joining them again this evening on the subject of spinal cord cavernomas. The recording of the webinar will be available on their YouTube channel in due course.
Meanwhile here is a link to the first webinar:
https://youtu.be/sd5iHanGtNU?si=y7B8CHtx2dH8YKem
